Here I was in my early twenties, my work was getting known all over the world, but I was secretly battling a potentially life-threatening disease

Siobhain shares how living with congenital myasthenic syndrome helped her become a fierce advocate for those with rare diseases.

How the MG Friends program makes a difference – for patients and volunteers.

When bodybuilder Barry Stalker found out he had myasthenia gravis, his life did a 180. “I went from being able to squat 400 pounds to my wife having to help me off the sofa.” 

Get started transforming the mistakes into your success strategies.

You are not your weight.

MGFA sat down with MG patient Julie and her boyfriend, Zack, who is running the marathon for MG awareness, to talk about why supporting the MGFA matters to them both.

As a new mom, Hannah Ensor faced challenging and confusing medical symptoms.

Tips for ensuring you are seen, heard, and accommodated.

What it’s like to go to college while battling myasthenia gravis