Siobhain Carolan, who lives with congenital myasthenic syndrome, discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week on the Hill.

Collaborating with others to drive increased awareness about rare disease around the world

The struggle seronegative myasthenia gravis patients face for diagnosis and treatment.

Rare Disease Day happens once a year, but you can bring awareness to myasthenia gravis any day of the week!

Illuminating the support rare disease patients need 365 days of the year.

Rare Disease Week starts on February 28. Learn how you can advocate for people with MG.

Janet Myder was a Dedicated MG Volunteer.

For Brenda Colmenares, an MG diagnosis set her on a path of rare disease advocacy and awareness.

MG Advocates Describe Their Experiences During Rare Disease Week

Volunteers Ensure Political Leaders Understand the Challenges of Rare Diseases like Myasthenia.