Siobhain Carolan, who lives with congenital myasthenic syndrome, discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week on the Hill.

Siobhain shares how living with congenital myasthenic syndrome helped her become a fierce advocate for those with rare diseases.

Dr. Heather Finlay-Morreale, a medical doctor who lives with MG, shares tips for preparing for your doctor’s appointment and making the most of the time you have with your provider.

Is it safe to exercise with myasthenia gravis?

In February the MGFA and the MG Community lost a dedicated volunteer and champion advocate of patients and caregivers. Friends and staff remember his legacy.

Get to know the main character of the newest Spiderman film

Knowing your antibody status helps you manage your myasthenia gravis.

How the MG Friends program makes a difference – for patients and volunteers.

When bodybuilder Barry Stalker found out he had myasthenia gravis, his life did a 180. “I went from being able to squat 400 pounds to my wife having to help me off the sofa.” 

Get started transforming the mistakes into your success strategies.